Ehlers-Danlos Syndrome (EDS) is a group of inborn disorders that affect your body’s connective tissues—mainly joints, skin, and blood vessel walls. People with EDS often have joint hypermobility, fragile skin, and osteoarthritis. Symptoms may range from mild to serious such as joint dislocation, and chronic pain. EDS can be diagnosed at an early age most people experience its symptoms at a young age and adolescence. There is no treatment for EDS, but you can manage the symptoms.
It might be possible you were experiencing EDS symptoms while growing, and couldn’t understand the real culprit. In this article, we will provide you with all facts about Ehlers-Danlos Syndrome, Diagnosis, Treatment, and all symptoms you grew up with ehlers danlos syndrome. So let’s explore and stay connected with us to improve your health status.
Understanding Ehlers-Danlos Syndrome:
Ehlers danlos syndrome is a rare group of inherited disorders that mainly impact the connective tissues of your body. These connective tissues structure and support the bones, blood vessels, skin, and other organs.
There are 13 subtypes of Ehler danlos syndrome each subtype has its own set of severity and symptoms. The most common type is hypermobile ehler danlos syndrome which is distinguished by fragile skin, chronic pain, and hypermobile joint.
Certain EDS subtypes may cause serious complications, like rupture of organs or blood vessels. There is no treatment for ehlers danlos syndrome but your healthcare provider focuses on managing your symptoms and preventing complications through medications, therapies, and in some cases, may need surgery.
Revealing Signs You Grew Up With Ehlers Danlos Syndrome:
Here are revealing signs you grew up with Ehlers-Danlos syndrome. It may help you recognize these disorders for your or your child’s well-being.
Joint Instability:
Joint instability is a more common symptom of ehlers danlos syndrome. Due to this symptom, you experience difficulty in participating in physical activities, that other kids can do easily eventually this can lead to chronic pain. Subluxation is another more common symptom of EDS.
Party tricks with your joints
Because of the hypermobility of their joints, many children can perform what some call “party tricks” with their hypermobile joints. Some might refer to this as being double-jointed. These tricks include extending the knees or elbows beyond straight, bending a finger back to their wrist, or sticking out their shoulder blades backward as if they were the stubs of wings.
Stretchy Skin
One of the most renowned symptoms of ehlers danlos syndrome is stretchy skin, but not everyone has this revealing symptom.
Frequent Subluxations:
Subluxations occur when your joint moderately dislocates, leading to instability and pain. If you were growing with EDS you must experience frequent subluxations, particularly in the hips, knees, and shoulders, hips.
Stretchy Skin:
Stretch skin is one of EDS’s most familiar symptoms, but not everyone has this symptom.
Delayed Milestones:
You may experience delayed milestones, for example, crawling and walking. It happens due to muscle weakness and joint hypermobility.
Fatigue:
Chronic fatigue is one of the more common symptoms of EDS. Remember, in your childhood, you experience a constant effort to stabilize your body. It happens because your body compensates for muscle weakness.
Chronic Pain:
Chronic pain happens due to joint instability and subluxations. This can be unbearable and impact your daily activities.
Poor Balance:
Muscle weakness and joint instability may also impact your balance, leading to difficulty in physical activities, and recall, you could not even walk without support.
Problems with Teeth:
EDS may impact the structure of your teeth, resulting in dental issues such as weak enamel, misalignment, and overcrowding.
Difficulty with Fine Motor Skills:
You may struggle with certain activities that require precise fine motor skills, such as tying your shoelaces and writing homework.
Frequent Dislocation:
Kids with ehlers danlos syndrome may experience frequent dislocations, which may be painful and need medical treatment.
Joint Pain:
Due to the hypermobility and joint instability people with EDS frequently experience joint pain.
Delay Wound Healing:
Due to the delicate of your skin, you may experience poor wound healing, leading to difficulty for bruises and cuts to heal properly.
Joint Stiffness:
You may experience difficulty to moving and pain. It happens due to hypermobility.
ADHD:
In some cases, kids with EDS are diagnosed with ADHD and ADD. Researchers say this happens due to hypermobility. Most boys show ADHD diagnosis.
Digestive Problems:
EDS may impact your digestive system, causing certain issues such as food sensitivities, bloating, and constipation.
Heart Problems:
It is not common but found in some types of EDS and it may impact the heart, causing certain issues such as aortic heart aneurysms and heart valve problems.
Sensory Processing Problems:
You may experience problems with sensitivity to light, touch, and sound. It was due to sensory processing problems.
Poor Posture:
People with Ehlers-Danlos Syndrome may have poor posture due to muscle weakness and hypermobility, which may lead to pain in the back and other problems.
Depression and Anxiety:
Children with EDS pay with their mental health, leading to depression and anxiety. It is due to all chronic symptoms related to ehlers danlos syndrome.
Persistent Headaches:
Due to joint pain and muscle tension people with EDS experience chronic headaches. This is a common symptom you must experience this if you have EDS.
Feel Dizziness While Standing:
Sometimes, people with EDS feel dizziness or even faint and blackout, when they stand up. This rare symptom is often due to another condition known as POTS.
Deprived Sleep:
People with EDS do not experience a good night’s sleep, it is due to discomfort and chronic pain, leading to fatigue and other problems related to sleep.
Feeling Different from Peers:
Growing up with Ehlers danlos syndrome may make you feel different from your peers, typically if they don’t understand your situation.
Easy Bruising:
People with EDS may experience easy bruising due to the fragility of their skin. Eventually, minor bumps may appear or even just pressure on the skin.
Conclusion:
Growing up with Ehlers danlos syndrome can be difficult for you, but don’t forget you are not alone. One thing that can help you, is if you connect with other people who have the same problems. What’s App group will help in this matter to share problems and get advice based on experience. After identifying these revealing signs, you can better realize your situation.
